Spaces Host and MAGA Digital Firebrand Razi Berry, a.k.a. "Phenomenology," needs help to assist with experimental treatment for rare, life-threatening disease

The single mother of two daughters is known for battling liberals on X, but is now facing the battle of her life - and is praying for a miracle to treat a rare disease that has left her bedridden.

Razi Berry, perhaps better known by her X handle, “Phenomenology” – a term from philosophy that she describes as meaning ‘living in the moment’ – is a prominent Spaces host and public advocate on X, perhaps best known for being a staunchly loyal advocate for President Trump.  Over the past twelve months, she has hosted countless Spaces on X, becoming something of a social media celebrity along the way – particularly in MAGA circles – where her calm demeanor, soothing voice, and thoughtful questions quickly turned into hallmarks of her digital gatherings that are often equal parts educational and entertaining.  Razi’s Spaces, which can go all hours of the day, are characterized by their cozy nature; guests do not speak over one another, and the talks are regularly more elevated and civil than most other Spaces – a welcome difference from what is ordinarily found on the rest of the platform.  

In this regard, Razi is something of a Spaces pioneer: from my experiences participating in them, there always seems to be a clearly defined objective each time, and the guests are usually carefully chosen based on their expertise relative to the chosen topic.  Some of Razi’s most famous guests – many of them All-Stars in the MAGA movement – include Kari Lake, Abe Hamadeh, JR Majewski, Mike Lindell, and Shawn Farash.  In addition to these Spaces, Razi has been the host of dozens of #MAGAMONEYBOMB campaigns for President Trump, allowing her to digest sometimes complex policies for listeners via the President’s “Agenda47” – including discussion of the many videos President Trump has released all throughout the past year which have highlighted key campaign issues, from border security, to crime, to the economy, to foreign policy.

A screenshot from one of many of Razi’s #MAGAMONEYBOMB campaign Spaces, where she helped raise money and lead a discussion on some of the most pivotal issues of the Trump 2024 campaign.

Razi’s around-the-clock dedication to the digital MAGA Movement is impressive by itself.  It is all the more remarkable, however, knowing that she suffers from a potentially terminal illness, called Synucleinopathy, an extremely rare and poorly understood neurodegenerative condition that affects the autonomic nervous system and weakens nerves and muscles throughout the entire body — epidemiology speaking, Razi’s illness is related to a class of diseases involving the protein α-synuclein, which includes Lewy Body dementia and Parkinson’s disease. 

Razi originally began experiencing symptoms in late 2019, and was already bedridden by the summer of 2020.  As a single mother of two young girls (who helped author Razi’s GiveSendGo Page), the financial and emotional toll on the entire family has been devastating.  A once entrepreneur of 18 years, Razi no longer has an income — leaving the family in dire financial straits. Over the past three years, Razi’s condition has only worsened: she has limited mobility that still allows her to type, and can speak (and host Spaces) albeit with increasing difficulty, but is otherwise mostly incapacitated.  If she tries to push herself beyond very limited tasks in bed, her persistent symptoms of body-wide fatigue, dizziness, blurred vision, a sped up heart rate, and muscular fasciculations only get worse. Razi had multiple biopsies done; the second of such biopsies (which I have independently evaluated) uncovered a rare neuromuscular antibody, making her particular diagnosis uniquely debilitating.

In recent months, increasingly she has experienced painful convulsions, seizures, dramatic fluctuations in heart rate, and muscle weakness and fatigue, which are at their worst in the middle of the night.  After months and months of botched diagnoses (Razi’s physicians originally suspected mold illness, followed by Lyme disease), doctors attempted to treat her with plasmapheresis, a therapeutic treatment that involves injection of blood plasma into the body.  Those procedures only exacerbated her illness, at one point causing a blood clot from the neck down that could have potentially been fatal without last minute medical intervention.  

Razi and her two daughters around Christmas 2019, right at the onset of her diagnosis. This was the final Christmas she was able to spend with her daughters in a normal capacity and by the following summer, was completely bedridden.

I had the great pleasure of becoming acquainted with Razi about a year ago, in one of her Spaces, and out of that was born a lasting friendship.  She has always been extremely generous to me, both within Spaces and on a personal level, and my admiration for her only deepened once I became aware of the challenging situation she was going through.  A naturally mild-mannered but proud woman, it became evident how difficult it was for Razi to discuss intimate details about her illness with me. I am heartened that she entrusted me to share some of these details with the world, details that have grown more desperate with time as symptoms have rapidly advanced, which is one of the tragic characteristics of this insidious disease. 

Prior to becoming ill, Razi was a fiercely independent and conservative woman, full of life and energy – she operated her own business, a source of joy, meaning, and pride, for nearly two decades, whose doors she was loath to close after her illness rendered her too weak to work by early 2020.  Despite her severe physical limitations, Razi’s can-do spirit has not subsided. She has found ways to continue to advocate and work on behalf of the causes she most cherishes.  Hence, her steadfast commitment to President Trump’s re-election efforts. Her convictions have guided her to the belief that the future of the country, and by extension, the fate of her daughters’ futures, necessarily depends on his return to the Oval Office in 2024 (her daughters attended as VIP guests at the recent AmFest event in Phoenix, Arizona, an annual gathering of some of the most influential conservative voices in media and politics).  Without President Trump’s return, America as we long understood it, will cease to exist – a view Razi believes in deeply, and of course, naturally finds a kindred spirit in the 45^th President.

One of Razi’s famous X Spaces, where she hosted Kari Lake, from October of this year.

After years and years of being misdiagnosed, doctors finally came up with a potential treatment for Razi that involves umbilical cord blood stem cells (and, importantly, not embryonic stem cells).  Two clinics, one located in Mexico, and another located in Panama, have already approved her application.  Razi has set up a GiveSendGo fund to raise money for transportation and at least two weeks of inpatient care. 

Razi is about 15% of the way towards her goal of raising $150,000, which is about what is needed for the above treatment and to accommodate special travel arrangements and other personal costs given her physical incapacities. 

Obviously, nothing is guaranteed by these treatments – and Razi is praying for a miracle (and hopes that readers will keep her and her daughters in their prayers).  However, there is promise that, in the best-case scenario, such treatments would halt, if not outright reverse, some of the disease’s rapid progression.  After having already spent tens of thousands of dollars on failed clinical tests, Razi’s condition has taken a major toll – financially, emotionally, spiritually — on the entire family.

Website of the Stem Cell Institute, the Panama-based clinic that has accepted Razi’s application and one of two clinics that will potentially treat her if she can travel and fund her inpatient care.

Razi could use some assistance from generous friends and sympathetic ears. She needs about $100,000-$125,000 more to receive the kind of top-of-the-line medical treatment necessary for this extremely rare disease. 

While in office, President Trump famously pioneered experimental treatments for patients with cancer and other serious illnesses through his “Right to Try” law, which saved many lives that otherwise might not be around today but for that lifesaving care.  

In that vein, Razi needs – and, in my humble view, deserves – a similar type of miracle; and we – her friends, family, and supporters – owe it to her for her unrelenting efforts over the past year that have gone a long way towards debunking misinformation about President Trump on X, disseminated by liberals and GOP primary opponents alike, and in educating all of us, myself included, about his policies and promises for the 2024 campaign.

You can contribute in either one of two ways: Razi’s GiveSendGo page can be found at the below link, and has more information regarding her diagnosis, potential treatment, and backstory.  Please consider making a contribution, and sharing the page with all family and friends:

CLICK HERE TO VISIT RAZI’S GIVESENDGO PAGE AND PLEASE CONSIDER MAKING A DONATION.

Screenshot of Razi Berry’s GiveSendGo Page, which can be found here.

You can also scan a QR code, available at the following link, which will allow you to make a contribution of an amount via Cash App:

Razi and her family very much appreciate your support, prayers, and, if you can find it in your heart, any contributions you might be able to make.  We all realize how many people are struggling financially right now given the terrible state of Biden’s economy. However, even just a small amount – in the spirit of Christmas and the holiday season – would go a long, long way.

Razi is an inspiration to so many of us – many have described her like an angel who patrols this messy digital square known as X.  At the very least, please keep her, and her two daughters in your prayers – especially during the holidays and into the New Year.  On behalf of Razi, and her family, may God bless you all.

Paul Ingrassia is a Law Clerk at The McBride Law Firm, PLLC. He graduated from Cornell Law School in 2022 and is on the Board of Advisors of the New York Young Republican Club. He is also a two-time Claremont Fellow. Follow him on Twitter @PaulIngrassia, Substack, Truth Social, and Rumble.